7 Common Misconceptions of Living with Charcot-Marie-Tooth Disease

7 Common Misconceptions of Living with Charcot-Marie-Tooth Disease
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Charcot-Marie-Tooth disease (CMT) is a neurological disorder that affects the muscles and nerves. It can cause a wide variety of symptoms, depending on the person. Many people with CMT live full, happy lives, but there are some misconceptions about living with this disease.

1) CMT Disease Affects the Teeth

The Charcot-Marie-Tooth disease leads to the extremities’ sensory and motor function loss. It does not, however, affect the teeth. CMT is caused by a mutation in specific genes responsible for the development and maintenance of nerve cells. This can cause problems with muscle movement, sensation, and balance. The disorder is also hereditary motor and sensory neuropathy (HMSN) or peroneal muscular atrophy.

CMT disease does not affect the teeth in any way. However, some people with CMT may have trouble taking care of their teeth properly due to muscle weakness. This can lead to gum disease and tooth decay. There are many ways to prevent these problems, such as using an electric toothbrush and flossing regularly.

2) CMT Has a Cure

Charcot-Marie-Tooth disease does not currently have a cure. However, treatments are available that can help manage the symptoms and improve the quality of life. These treatments include physical therapy, occupational therapy, braces, and orthotics. There is also a new gene therapy treatment showing promise in clinical trials. Researchers are continuing to work on new treatments and a cure for CMT.

While there is no cure for CMT, treatment can manage the symptoms. This allows many people with CMT to live full, happy lives.

3) CMT Patients Cannot Live Normal Life

Many people with CMT live normal lives. The symptoms of CMT vary from person to person so some people may have more severe symptoms than others. However, many treatments are available to help manage the symptoms and improve the quality of life. With proper treatment, people with CMT can lead full, happy lives. cmtausa.org 

4) CMT is Contagious

Charcot-Marie-Tooth disease is not contagious. It is caused by a mutation in certain genes responsible for the development and maintenance of nerve cells. This can cause problems with muscle movement, sensation, and balance. The disorder is also hereditary motor and sensory neuropathy (HMSN) or peroneal muscular atrophy.

5) The Disease Presents Similar Symptoms in the Family

CMT can present differently from person to person, even within the same family. The disorder is caused by a mutation in specific genes responsible for the development and maintenance of nerve cells. One family member could present with mild symptoms, while another could have more severe symptoms.

6) CMT Affects Life Expectancy

Charcot-Marie-Tooth disease does not affect life expectancy. Patients can lead long and full lives with the disorder. However, they need to be cautious as the disorder might make them more susceptible to injury. They should also avoid activities that could put them at risk for falls or other injuries.

7) CMT is Always Progressing

Charcot-Marie-Tooth disease is not always progressing. CMT symptoms can vary from individual, and some people may experience little to no progression of their symptoms over time.

These are just a few of the misconceptions about living with CMT. It’s important to remember that everyone experiences the disease differently. Don’t let these misconceptions stop you from living your life to the fullest if you have CMT.

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